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A Rare Recovery from "Incurable" Brain Cancer

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A clinical trial gives Susan the gift of time

As Susan Rooney was working one day she noticed that typing had suddenly become difficult. What used to be automatic now took concentration.

She was puzzled and began noticing other symptoms like being unable to open or put vegetables into the plastic produce bags at her grocery store.

Her doctor suspected a stroke, but Susan consulted a neurologist. She was shocked when an MRI revealed an incurable stage IV brain tumor.

The timing couldn't have been worse. Her partner was being treated with esophageal cancer and her daughter was about to graduate from high school.

Her surgeon agreed to postpone her treatment, so a few days after her daughter's graduation she went into surgery to remove a glioblastoma – a rare type of aggressive central nervous system tumor. The survival rate is a grim 14.6 months after diagnosis with only 10 percent of patients living for more than 5 years.

Following the surgery, Susan underwent chemotherapy and radiation and was given the opportunity to enroll in a clinical trial.

"Standard of care for my type of cancer wasn't working. At one point, the tumor was preventing me from walking, driving, and even getting dressed," Susan said. "I thought let's try the trial. It can't be any worse than how I'm feeling right now."

The first clinical trial did not produce any positive results, but a second trial in 2014 was able to shrink the tumor down to almost nothing.

"I don't think I would be here if I hadn't enrolled in the trial," Susan said. "It has given me a second chance." She will be monitored for the rest of her life and will take nilotinib, a drug that is focused on preventing a recurrence of her tumor, for as long as it is able to keep her stable.



She still has trouble with fine motor skills but is grateful for the time she can spend with her kids, family, and friends. She can walk again and is back working on her favorite hobby, quilting.

The Moores Cancer Center at UC San Diego has an internationally recognized team specializing in the treatment of brain tumors, including glioblastoma.


     

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